My sweet nephew, seriously, he’s a great kid, has been in the hospital with complications from Mono. And he’s going to be fine. But, we were all a little scared. Or I was. My own medical history makes me nervous anytime words like “Hematologist” and “tests” makes me a little nauseous. But, seriously, he’s going to be fine.

While I was visiting I struck up a conversation with his nurse. Partly because I was going to check out the teen room and I needed to know where it was at. There’s a very weird part of me that likes to scope out these things and see how it compares to my old hospital. Now, nothing is like the dungeon of a children’s hospital I was treated at, but I’ve watched at the hospital has evolved and become child and family friendly. This one was no exception.

But, while I was talking to his nurse, my own health history came out. My being a childhood cancer survivor and now an adult. And we talked about what I do now. How I write books about teens living (never dying) with chronic illness and disabilities. She asked what my books were about and I gave her the elevator pitch.

She asked where she could get a few copies because she had some teens that needed them.

This was the second time in 24 hours someone has asked for my books because they knew of teens that needed them.

I gave his nurse my info and she wants to talk to the Child Life Specialist there to find out how to go about building an #OwnVoices library for the hospital. There had already been movement to build a better library for the patients in the hospital. And I sort of feel like I was there today just to help with this.

Let’s build a better library.

This is where I need you. Do you know of a great book that deals honestly with either a disability or chronic illness? Do you have a copy? Would you be willing to donate or buy a copy for the hospital? I know that there are only a handful of books right now that are #OwnVoices, but I would especially love those. And not just YA. Picture books all the way through.

They would especially love some books that feature :

  • Sickle Cell Anemia
  • Kidney disease/transplants
  • Chrons/ Colitis
  • Epilepsy
  • Cystic Fibrosis

Do you have anything that fits here? Contact me here or any of my social media places. Also, feel free to spread this far and wide.



  1. Maybe Andrew Smith’s 100 Sideways Miles for epilepsy? I don’t think it’s #OwnVoices, but I’ve seen it pretty well reviewed by people with epilepsy, I think, and it’s a positive portrayal of the main character, who has it. (He definitely doesn’t die!)

  2. I don’t have any book recs at this time, though I’ll keep an eye out. I’m looking for books on CP right now so I’ll let you know if I find some good ones. But I would be more than willing to donate money. Maybe you could start a GoFundMe. I would love to help in any way I can!

Leave a Reply